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Beyond the Diagnosis unites art and science to bridge the knowledge gap in healthcare, promote inclusivity, and raise awareness for children living with rare and life-altering diseases.
Giuliana
Apert Syndrome Artist: Vivian McNeeley
Noah & Laine
June 9th CLN2 Batten Disease Artist: Dan Lake
Joanna
June 30th Arthrogryposis Multiplex Congenita Artist: Tariq Rahman
Giuliana
Apert Syndrome Artist: Vivian McNeeley
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The following rare and life-altering diseases have awareness days in June: Apert Syndrome, CLN2 Batten Disease, KBG Syndrome, Paternal Uniparental Isodisomy Chromosome 4, Arthrogryposis Multiplex Congenita and SYNGAP1.
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