As COVID-19 rages on, an often overlooked group of people suffering with symptoms long after they have tested negative for COVID-19...

This story is not for the moms in the rare disease community because they are this story. This story is for the mostly old, mostly white,...

When my daughter first presented with hyperpigmented macules, I brought her to her pediatrician. When her pediatrician did not have an...

Sometimes, something crosses our path that appears to mean nothing to us but we check it out anyway because our gut tells us to. That is...

Globally, there are 350 million people suffering from 7,000 different rare diseases. It takes an average of almost 8 years to get...

Growing up, I knew that more than anything, I wanted to be a mom. Long before I had children, I worried about being a good mom. I wanted...