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2024
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• EVERSANA (Scottsdale, AZ) • Arkansas Children's (Little Rock, AR) • National Institutes of Health (Bethesda, MD) • Warren Alpert Medical School Brown University (Providence, RI) • Hasbro Children's Hospital (Providence, RI) • Rhode Island College (Providence, RI) • Children's Hospital of Richmond at VCU (Richmond, VA) • World Orphan Drug Congress (Boston, MA) • Boston College (Chestnut Hill, MA)
2023
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• Broad Institute (Cambridge, MA) • National Institutes of Health (Bethesda, MD) • Quinnipiac Frank H. Netter MD School of Medicine (Hamden, CT) • The Children's Hospital of Alabama (Birmingham, AL) • Boston College (Chestnut Hill, MA) • SCN2A Family & Professional Conference (Boston, MA) • The Rare Fair (Raleigh, NC) • Arkansas Children's Northwest (Springdale, AR) • Thea Foundation (Little Rock, AR) • Arkansas Children's Hospital (Little Rock, AR) Hasbro Children's Hospital (Providence, RI)
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• Rare in Times Square (Manhattan, NY)
2022
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• MAGIC Clinic (Calgary Alberta, Canada) • Rare Disease Network of Alberta (Alberta, Canada) • National Institutes of Health (Bethesda, MD) • Quinnipiac Frank H. Netter MD School of Medicine (Hamden, CT) • IONIS Pharmaceuticals (Carlsbad, CA) • Broad Institute (Cambridge, MA) • Food & Drug Administration (Silver Spring, MD) • IPSEN (Cambridge, MA) • The Children's Hospital of Alabama (Birmingham, AL) • BlueBird Bio (Cambridge, MA) • Spark Therapeutics (Philadelphia, PA) • Word Orphan Drug Congress (Boston, MA) • Rare Fest (Cambridge, England)
2021
• Broad Institute (Cambridge, MA) • Quinnipiac Frank H. Netter MD School of Medicine (Hamden, CT) • National Institutes of Health (Bethesda, MD) • Food & Drug Administration (Silver Spring, MD) • Cambridge Rare Disease Network (United Kingdom) • Texas Rare Alliance (Austin, TX) • My City Med - 24 Hours of Rare • MAGIC Clinic (Calgary Alberta, Canada)
2020
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• Food & Drug Administration (Silver Spring, MD) • The Children's Hospital of Alabama (Birmingham, AL) • H4B Boston (Boston, MA) • Broad Institute (Cambridge, MA) • National Institutes of Health (Bethesda, MD) • Quinnipiac Frank H. Netter MD School of Medicine (Hamden, CT) • Positive Exposure (NYC, NY) • Virtual Investor and Innovator Conference
2019
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• Broad institute (Cambridge, MA) • Quinnipiac Frank H. Netter MD School of Medicine (Hamden, CT) • Ireland Rare Disease Day (Ireland) • National Institutes of Health (Bethesda, MD) • Metropolitan Hospital Center (NYC, NY) • Food & Drug Administration (Silver Spring, MD) • The Children's Hospital of Alabama (Birmingham, AL) • Albert Einstein College of Medicine (Bronx, NY) • Nemours Alfred I. duPont Hospital for Children (Wilmington, DE) • 12th International SADS Foundation Conference (Atlanta, GA) • New England Hemophilia Association Fall Fest (Warwick, RI) • BTG Family Meetup Baltimore (Baltimore, MD) • Disorder: The Rare Disease Film Festival (San Francisco, CA)
2018
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• Mass Bio Rare Disease Day (Cambridge, MA) • World Symposium (Boston, MA) • The Children's Hospital of Alabama (Birmingham, AL) • Nemours Alfred I. duPont Hospital for Children (Wilmington, DE) • Food & Drug Administration (Silver Spring, MD) • Broad Institute (Cambridge, MA) • Mayo Clinic at Rochester Art Center (Rochester, MN) • Texas State University (San Marcos, TX) • New England Hemophilia Association Fall Fest (Manchester, NH)
2017
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• National Institutes of Health (Bethesda, MD) • Broad institute (Cambridge, MA) • Food & Drug Administration (Silver Spring, MD) • The Children's Hospital of Alabama (Birmingham, AL) • Quinnipiac Frank H. Netter MD School of Medicine (Hamden, CT) • Disorder: The Rare Disease Film Festival (Cambridge, MA) • Zucker School of Medicine at Hofstra (Hempstead, NY)
2016
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• National institutes of Health (Bethesda, MD) • Broad Institute (Cambridge, MA) • Zucker School of Medicine at Hofstra (Hempstead, NY)
2015
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•Warren Alpert Medical School Brown University (Providence, RI) • Harvard University Medical School (Boston, MA)