News 2024-2015
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2024
"Art exhibition at Brown’s Warren Alpert Medical School puts faces to names of rare diseases"
February 7, 2024
2022
"FDA Rare Disease Day 2021"
February, 2021
2020
"Focus on Rare Disease: Putting Patients in the Driver's Seat"
February, 2020
2019
"Faces of Rare Diseases"
Patrick Mairs
January 17th, 2019
• CSL Behring • Broad Institute • Albert Einstein College of Medicine • News 12 The Bronx • BioQuick News • NIH Director's Blog • Pink Sheet • Food & Drug Administration • abc12 • WJAR 10 • Providence Journal
2018
"Beyond the Diagnosis"
February 20th, 2018
• Broad Institute • The Marietta Times • WHYY • The Temple News • Mayo Clinic • The Lancet Child & Adolescent Health • Kxan • Fox7
2017
"Beyond the Diagnosis": Art exhibit opens at the Broad Institute (2017)"
February 24th, 2017
• Broad Institute • Rhode Island Monthly • Disorder: The Rare Disease Film Festival • Food & Drug Administration
2016
"Leading the Way: Beyond the Diagnosis"
Daryl Velez
October 11th, 2016
2015
"Exhibit Takes Viewers Beyond the Diagnosis"
David Orenstein
February 5th, 2015